Portrait: Kenneth
I’m a congenital arterial-venous hemorrhage stroke survivor from a rupture in 2016. The rupture knocked me out in my own home leaving me untreated for 20 hours before being found and rushed to the hospital.
Survivor Stories
Many of you have written to SameYou about your experience of brain injury and told us how you identified with Emilia's story. There was a common feeling of relief about hearing a familiar story from someone young, and speaking out to normalize the injury. People were comforted that Emilia had gone through something similar to them or to a family member or loved one.
The overwhelming emotion was of gratitude that Emilia was breaking her silence and that enabled and emboldened so many others to tell their brain injury story - some for the first time. It was as if people now have permission to speak out about their story.
I get days when I just want to give up. But after hearing your story it has made me realize, I'm not on my own!
You have told us that by sharing your stories, and reading other people's, offers hope, comfort and much needed peer-to-peer support that is often hard to find.
SameYou have created this support resource called Portraits to tell the untold story of brain injury. If you would like to share your story, you can submit your story via our Share your story page.
Portrait: Chris
12 years ago, at the age of 43, I very unexpectedly suffered a severe hemorrhagic stroke. I was fit and healthy at the time, my consultant even remarked that I was the last person he expected to have a stroke.
Portrait: Peter
I had just retired at the age of 58. I was looking forward to restoring our quirky Georgian house, with plans for a B&B. I had dreamt of this as our retirement project. Then “bang” the explosion.
Portrait: Ryley
Ryley had a stroke in January 2021, aged 9 years old, causing right sided weakness and speech difficulties.
Portrait: David
I was 19 when I was t-boned in a little 1997 Mazda Miata by a full-size truck. At the hospital, I didn't understand what was going on.
Portrait: Eva
In June 2019 I had a subarachnoid haemorrhage, due to a burst brain aneurysm. Optimism and determination were essential to my recovery.
Portrait: Stacie
In January 2019 I had a frontal craniotomy to remove a cyst which may have been causing several grand mal seizures. Little did I know this would present a whole new set of challenges.
Portrait: Axel
At the age of 11, Axel survived my subarachnoid hemorrhage. Life hasn’t been too bad. I’m grateful for what I’ve been able to do, despite my limits.
Portrait: Alan
At the age of 42, I had a brain hemorrhage and aphasia, which is a communication disorder. After the operation I couldn’t speak for two years. My social network fell apart.
Portrait: Andy
8th June 2020, I woke up and something didn't feel right. I couldn't seem to get comfortable on my right side. In fact, that whole side felt weird.