Many of you have written to SameYou about your experience of brain injury and told us how you identified with Emilia's story. There was a common feeling of relief about hearing a familiar story from someone young, and speaking out to normalize the injury. People were comforted that Emilia had gone through something similar to them or to a family member or loved one.
The overwhelming emotion was of gratitude that Emilia was breaking her silence and that enabled and emboldened so many others to tell their brain injury story - some for the first time. It was as if people now have permission to speak out about their story.
I get days when I just want to give up. But after hearing your story it has made me realize, I'm not on my own!
You have told us that by sharing your stories, and reading other people's, offers hope, comfort and much needed peer-to-peer support that is often hard to find.
SameYou have created this support resource called Portraits to tell the untold story of brain injury. If you would like to share your story, you can submit your story via our Share your story page.
On April 7, 2017, at age 22, I was unintentionally shot in the head by my best friend in our on-campus apartment, one month before college graduation. He was in his bedroom, fooling around with a gun he didn’t know was loaded, and by some means, he pulled the trigger.
My name is Mariana Hibert, I'm Mexican and I'm a social worker. My brain injury story begins in my adolescence when I was diagnosed at the age of 19 with Takayasu's Arteritis. a rare genetic and immune disease affecting the circulatory system. It's seen as an arterial inflammation causing an obstruction or aneurysm towards any vital organs. In my case, both of the carotids were occluded, so the blood irrigation of the brain was insufficient.
Something didn’t feel right. I felt like my vision had changed. I was aware that I couldn’t see the full windscreen from my position in the driver’s seat. This was odd. I thought it was a migraine so I decided to leave the car, take my son on a short walk to my father’s house, take some paracetamol and have a lie down.
On September, 21st 2023, while I was out for my usual 5am run on Tawa Street, I got hit by a car. Running was a big part of my life. That morning, my dad found me. My eye socket was blown out, but thankfully, I didn't have any lasting eye problems.
In September 2019, I was a 33-year-old teacher in Canada. I noticed that I was having a difficult time understanding the students when the class was noisy. I thought my ears were clogged. I therefore went to an audiologist.
In 2017, I sustained a traumatic brain injury from a fall in the Rocky Mountains and fractured my occipital bone, which is in the back of my skull. This caused my brain to bounce off the inside of my skull resulting in three large brain haemorrhages, nearly fatal cerebral oedema or swelling of my brain, loss of my sense of smell, and several new disabilities.
My mom received a phone call from the doctor telling her that their little baby girl, their six-month-old who seemed so strong and healthy, had suffered a stroke. What did that mean? Well, to put it plainly, the news my mom received that day was that Hannah would likely never walk, talk, or reach adulthood.
I didn’t initially know what was happening when I awoke from sleep with the worst headache of my life. I wanted to get up, but I had trouble standing. Then, the vomiting began. Luckily, my husband took me to the emergency room where a scan revealed the cause: a subarachnoid hemorrhage.
Aged 30, on December 30, 2023, I went to bed feeling fine but woke up never feeling the same. Whilst I was sleeping, I had a subarachnoid brain aneurysm which burst and led me to have two surgeries and being medically induced into a coma for five days.
Unfortunately, due to the aneurysm rupturing, I had added complications. The aneurysm was close to my carotid artery and it was touch and go what the outcome of it would be.
People around me noticed changes in my behavior and questioned if I was okay. Despite multiple visits to the doctor and medications, it was numbness in my face and tongue that finally led me to visit A&E.
Thanks to my mom’s unwavering persistence, I was given a CT scan which revealed shadowing on my brain. An MRI then confirmed a 3.2 cm giant aneurysm near my brain stem, posing a significant rupture risk.