All Survivor Stories

Portrait: Holly image

Portrait: Holly

I experienced an ABI in October 2021. Following a successful donor stem cell transplant to cure Hodgkins Lymphoma, I developed an extraordinarily rare form of post-transplant lymphoproliferative disorder (PTLD) resulting in multiple brain lesions.

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Portrait: Samantha image

Portrait: Samantha

My name is Samantha. When I have to tell someone about my brain injury, I just say I fell downMy story is long and, quite frankly, traumatizing. So I say, I had a fall. I do wish my story was cooler for you. I wish it involved sharks or crazy daredevil stunts.

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Portrait: Juan Jose image

Portrait: Juan Jose

My name is Juan Jose, I am 35 years old and I am a social worker from the Republic of Honduras, Central America. I want to share my experience as a survivor of a ruptured brain aneurysm and the challenges that followed in my recovery process.

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Portrait: Chris image

Portrait: Chris

My name is Chris and I’m here to tell my story after being inspired by other survivors who have already shared theirs. I don’t like to talk about myself, but I think I need to practice doing this, and, for some reason, I thought this would be a safe place to start. 

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Portrait: Eliana image

Portrait: Eliana

My name is Eliana, and I live in Providence, Rhode Island, with my husband and two daughters. Although I was diagnosed with a hemorrhagic stroke on October 7, 2022, at the age of 40, receiving this diagnosis and timely medical care was more of a challenge than you’d think. 

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Portrait: Rhys image

Portrait: Rhys

This is my story about an acquired neurological condition which was estimated to affect around 1 in 3 million people when I received my diagnosis in 2016. Now, current estimates suggest it could be much more prevalent and affect around 1 in 2000 people, which makes it a borderline rare disease in the United Kingdom.

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Portrait: Tom image

Portrait: Tom

I have suffered two traumatic brain injuries (TBI’s) in my life. The first was in 2002, when I sustained a serious TBI after being assaulted. The second was during my penultimate university summer holidays in 2008; after cycling into a wall at the end of a sloping decline and falling 20 feet...

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Portrait: Nicholas image

Portrait: Nicholas

On March 15th, 2016, I was involved in a single vehicle motorcycle crash. Both my brain and body went through severe trauma. I was wearing full protective gear but was massively concussed with a right-side brain bleed, a sub-dermal hematoma, and a crushed left orbital.

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Portrait: Jean image

Portrait: Jean

Ten years ago, I experienced weird symptoms where my hearing went funny; I could hear noise but couldn’t decipher the sound. My GP sent me for a scan and they diagnosed a cavernoma (a cluster of abnormal blood vessels) which had bled. My balance became very bad and I couldn’t stand if I closed my eyes...

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Portrait: Grace image

Portrait: Grace

My name is Grace and I am 32 years old. In 2020, I was 28 and living and teaching in Rarotonga with my partner, Theo. In April, I was feeling unwell and having some strange symptoms...

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